January 17, 2010
January 10, 2010
Joe the Tick’s Weekly Twitter Updates for 2010-01-10
- @sharonrainey It's a fight, that's for sure. A long slow fight but well worth it. Thanx Lyme Fighers
in reply to sharonrainey # - it's a happy & sad day. Happy 2 beat 2 serious infections which have caused me a great deal of problems. Sad 4 having 2 continue treatments. #
- reviewing latest blood test. Beat the #Ehrlichia & #Rickettsia infections but still has #Lyme disease. Lyme Fight Continues! #
January 3, 2010
Joe the Tick’s Weekly Twitter Updates for 2010-01-03
- @zebrafinch Thanks, it's always a tough season but I've gotten through it with the help from some new friends. in reply to zebrafinch #
- Action Alert regarding proposed NJ legislation concerning CFS & Lyme http://www.lymedisease.org/news/lyme_action_alerts/298.html #lyme #
- Happy New Year Lyme Fighters #lyme #
December 20, 2009
December 6, 2009
Joe the Tick’s Weekly Twitter Updates for 2009-12-06
- Study finds Lyme in 90% of deer ticks http://www.joethetick.com/1964 #Lyme #
- MN Lyme Bill in the Works | Senator John Marty to Attend the Event http://www.joethetick.com/1967 #lyme #
December 4, 2009
MN Lyme Bill in the Works | Senator John Marty to Attend the Event
Join us on Dec 8, 2009 Minnesota State Senator John Marty, author of Senate bill SF 1631.The goal of this bill is to protect physicians who treat Lyme disease aggressively from unwarranted intrusions by the state medical board. Come and learn how the passage of this Physician Protection bill will improve patient access to physicians who are able to correctly diagnose and treat Lyme disease.
About Lyme Disease in Minnesota:
· Lyme disease is the fastest growing vector-borne disease in the United States. Minnesota ranks 8th, with 1,282 cases reported in 2008.
· The CDC estimates the number to be ten times what is reported.
· 1 in 3 deer ticks in Minnesota carry the Lyme bacteria, according to the MN Dept of Health.
· Lyme cases have spiked 450% in Minnesota from 1998 – 2008.
· Tests for LD are highly inaccurate and result in false negatives; insurance companies then use these results to deny care.
· Patients are often denied much-needed antibiotic treatment by doctors who are misinformed about the disease or fear reprisal from state medical boards.
· Each year thousands go undiagnosed or misdiagnosed, told that their symptoms are “all in their head.”
About Senator Marty:
As chair of the Senate Health Policy Committee, Senator Marty is in an advantageous position to advocate for the bill. With two decades of legislative experience, Senator Marty has the necessary skills to move the bill forward.
Make a difference:
Having a strong advocate in the state senate is only one part of the strategy for passing this bill. The most important part is citizen activism; Minnesota Lyme Action Support Group needs Minnesotan’s to speak up and demand action from governmental officials, including the senators and representatives elected from their districts.
Be a part of the solution to improve Lyme disease diagnosis and treatment in Minnesota.
We Need Your Help!
Tuesday, December 8, 2009
7:00 PM
Hosanna Lutheran Church
9300 Scandia Trail
Forest Lake, Minnesota 55025
Study finds Lyme in 90% of deer ticks
Written by Justin Reynolds, Mack Reid
A recent study of ticks collected in four nearby Fairfield County towns in 2008 and 2009 showed that 90% of them carried Lyme disease bacteria and 30% of them carried the parasites that cause babesiosis, a sometimes severe malaria-like disease that can be fatal.
Because there wasn’t money in the town budget for testing ticks that were collected in July at Slaughter Field in Wilton, no testing of those ticks was done, said Pat Sesto, Wilton’s director of environmental affairs and the chair of the Fairfield County Municipal Deer Management Alliance. But testing of ticks caught in Bethel, Newtown, Redding and Ridgefield showed high instances of infection.
“It’s fair to assume we are no different,” Ms. Sesto said Tuesday. “Most definitely we should take lessons from these results. Information leads to better decisions, certainly. The more we know about the various diseases that the ticks carry, the better understanding we’ll have moving forward.”
Ms. Sesto said a Department of Environmental Protection fly-over of Wilton last winter pegged the deer population in town to be somewhere in the 60 to 64 deer per square mile range.
“If you want to cause the tick population to substantially subside, you want to be in the eight to 10 range,” she said.
Ms. Sesto said the removal of deer through controlled hunts is the best way to solve the tick problem.
“Our position, the best way to deal with the tick population is to deal with the deer population,” Ms. Sesto said. “If the tick doesn’t get the last blood-meal from the deer, it won’t lay eggs. The adult tick either lays her eggs and dies or dies without laying eggs.”
Ticks need to get the blood-meal from a large mammal, which is almost always a deer, according to Kent Haydock, public education chair of the deer management alliance.
Ms. Sesto said ticks can be removed through the spraying of pesticides, but that method has ill effects on the environment.
“This is a community that values clean ground water and clean surface water,” she said. “You’d need universal spraying of the town to get rid of ticks, but then you also get rid of other things, too.” Ms. Sesto said the removal of these insects and other species adversely affects the food web as well.
Ms. Sesto said controlled deer hunts — on both private and public land — are necessary for reducing the tick population. She said property owners interested in hooking up with hunters should call her office at 563-0180.
“Contact my office. We have a lot of hunters who call,” Ms. Sesto said. “Hunters are out there, but the opportunity to connect with private property owners is weak. We need to build up a system that helps that connection along. It’s something I’d guess the Deer Committee will be focusing on.”
Ms. Sesto said property owners might feel a bit apprehensive about dealing with hunters for the first time, but that they can call her and she would tell them what sort of questions they should ask the hunters.
“Hunters are conscientious,” she said. “Working with them, it’s new for me. But the stereotypes you see in television and in the cartoons — it’s not the case. These are really the guys next door, the normal dad down at the soccer field.”
Hunters must be licensed, Ms. Sesto said.
“The state has criteria of training and proficiency,” Ms. Sesto said. “Every year, you have to get permits from the state. Otherwise, you are poaching. You are breaking the law.”
The study
The University of New Haven study led by Dr. Eva Sapi was done under contract with the Fairfield County Municipal Deer Management Alliance. The researchers collected 899 ticks from 15 locations in Ridgefield, Redding, Wilton, Bethel and Newtown from October 2008 to July 2009.
Overall, the study found 90% of the ticks tested were infected with the Lyme bacteria, with the range from 96% in Newtown to 88% in Redding.
The ticks collected in Ridgefield were not tested for the Lyme bacteria, but for the babesiosis parasite, Babesia microti. It was found in 33% of the ticks, far higher than the previously reported levels of 5% to 8%.
Combining results from all towns on the babesiosis parasite, the study found a 30% infection rate with a range from 28% in Newtown to Ridgefield’s 33%.
A different study by Columbia University researchers on ticks collected in nearby Westchester County, New York, 65% of ticks infected with the Lyme bacteria, Borrelia burgdorferi, and a total of 72% to ticks infected with either Lyme or one of four other tick-borne diseases.
The New York study found 32% of ticks infected with more than one pathogen.
November 29, 2009
Joe the Tick’s Weekly Twitter Updates for 2009-11-29
- Happy Thanksgiving
# - I wouldn’t promote this if I weren’t happily using it myself. Easy money on Twitter w/o spamming. http://spon.in/zi/zhs #
- 82 Twitters Are Now Wearing the Support Lyme Disease Awareness Twibbon http://www.joethetick.com/1517 #lyme #twitter #
- Joe the Tick's Weekly Twitter Updates for 2009-11-22 http://www.joethetick.com/1958 #lyme #twitter #
November 22, 2009
Joe the Tick’s Weekly Twitter Updates for 2009-11-22
- Nurses with Lyme disease Form Southern Oregon Lyme Disease Support Group http://www.joethetick.com/1953 #lyme #oregon #
- Lyme Disease Vaccine? Tick Saliva Found to Protect Mice from Lyme Disease http://www.joethetick.com/1951 #lyme #health #
- Many newcomers, some fly-by-nighters, but these guys pioneered ethical & responsible ads on Twitter http://spon.in/zc/0p4 #
- Biolabs Multiplying Like Rabbits: A Clear and Present Danger http://www.joethetick.com/1947 #lyme #
- Imaging Technique Leads to Better Understanding On How Ticks Transmit Lyme Disease http://www.joethetick.com/1945 #lyme #
- @andreabakes Oh, no. That's not good at all. Best of luck. in reply to andreabakes #
- Twittad’s got some cool new features & cool new look to go along with it. http://spon.in/y2/1wA #
- @andreabakes I think I finally beat the h1n1. Nasty for sure but nothing like big media, big pharma and the #CDC tried to scare us. in reply to andreabakes #
- We now have 77 supporters wearing the Lyme Disease Awareness Twibbon http://www.joethetick.com/1517 #lyme #health #uos #undertheeightball #
- @andreabakes Funny. the H1N1 Blues
in reply to andreabakes #
November 21, 2009
Nurses with Lyme disease Form Southern Oregon Lyme Disease Support Group
By Bill Kettler
Mail Tribune
Put two nurses with 70 years of combined experience in the same room and chances are they’ll find plenty to talk about.
When both have Lyme disease, the conversation transcends the usual shop talk.
The first meeting of the Southern Oregon Lyme disease support group has been scheduled for 6:30 to 9 p.m. Thursday in the Smullin Center, Room 35, Rogue Valley Medical Center, 2825 E. Barnett Road, Medford.
For more information, call 944-5068 or 879-0222. For general information about Lyme disease in Oregon, contact the Oregon Lyme Disease Network at 541-312-3081 or visit the Web site at www.oregonlyme.org.
Sharon Lee of Eagle Point was infected some 30 years ago in California, when nobody on the West Coast knew much about the strange tick-borne disease that’s difficult to diagnose and produces a wide range of symptoms among its victims.
When Judi Johnston of Ashland came down with Lyme during the past year, she realized the Southern Oregon medical community still knows relatively little about the disease.
“I don’t know what made me more upset,” Johnston says. “Personally, not being able to find the (treatment) resources, or professionally, knowing the resources aren’t here.”
Lee and Johnston plan to use their nursing experience and training to assist Rogue Valley residents who may not even know they have Lyme disease. They’re organizing a support group to help local people determine whether they’re infected, and steer them to physicians who can give them appropriate care.
“There’s far more Lyme disease than is being recognized,” says Johnston, a nurse for more than 30 years. “And we don’t have Lyme-literate physicians in this part of the country.”
The group’s first meeting is scheduled for Thursday at the Smullin Center on the campus of Rogue Valley Medical Center.
The bacterium that causes Lyme disease is transmitted to humans by certain species of ticks, including the blacklegged tick (Ixodes pacificus), which thrives in Southern Oregon and California. The bacterium is also carried by tick nymphs, which are so tiny people often fail to realize they may have been bitten.
Johnston says she “never did see the tick,” that infected her.
Lee describes the bacterium itself as “a stealth organism” that evades the body’s natural defense mechanisms. If it establishes itself in the body over time, “your immune system can’t even find it,” she says.
Symptoms vary widely from person to person. The bacterium may attack the joints, the heart, the brain or other parts of the nervous system. Lyme has been confused with a number of other diseases, including multiple sclerosis, fibromyalgia, chronic fatigue syndrome, amyotrophic lateral sclerosis and even Alzheimer’s.
“Some people can be sidelined and in a wheelchair,” says Lee, who retired to Eagle Point after 45 years in nursing. “Others can respond (to treatment) and do pretty well.”
Ticks often carry a number of other infectious agents, and Lee says researchers now believe the wide variety of symptoms associated with Lyme may be related to those other tick-borne diseases.
She says early diagnosis is critical for effective treatment, but tests don’t always provide conclusive proof of infection. Some people produce a rash with a characteristic bulls-eye pattern soon after they’re infected, but others may not, further complicating the diagnostic process.
Lee says she and Johnston hope to recruit a local physician who might be willing to learn more about Lyme disease so that local people can get effective treatment without traveling to California.
“We want this to be more than a support group,” Johnston says. “We want to educate people, too.”
Reach reporter Bill Kettler at 776-4492 or e-mail bkettler@mailtribune.com